I am very happy to share with you that I have still been seizure free! My last seizure was March 3rd 2012. To some people this may not seem like a huge deal, but if you look at it from my perspective, I think you may realize the significance.

You see a year without seizures means that I have had a full year to learn and grow without lapses in time or regressions from the seizures and rescue meds. I’ve gotten to celebrate, actually celebrate every holiday with my family. No hospital stays or my brother and sister having to be shipped off to other family so Mommy and Daddy can make sure I am ok.

That last seizure I had, I woke up in the ER asking if it was my turn to ride. You see… I had a seizure on the way home from my horseback riding lesson that I got for a birthday present. I don’t remember getting to ride at all and that was a full hour before my seizure started!

Mommy and Daddy tell me that they cherish these good days. I have learned so much this last year. I sing actual songs, hold conversations, can tell you what I did at school, can ask for things I want. I am doing really good at being potty trained now. My balance is better and I am getting stronger. This seizure free streak most likely won’t last forever… not to be negative, but that is just the reality of the type of epilepsy I have. However, my next seizure could be in 5 minutes or in 5 years. There is no predicting when it will come. Until it does, I will keep on growing and singing and laughing and loving.

Oh, and I will keep on raising awareness for Epilepsy and Dravet Syndrome. Maybe someday a really smart scientist or doctor will figure out how to predict seizures and figure out how to cure Dravet Syndrome!

With lots of love,

-Kye