Tomorrow is my 6th Birthday! Taylor and I decided that for dinner we are having french toast. Instead of birthday cake we are having ice cream sundaes! It is fun being a twin and having someone to celebrate my birthday with!

We have been having a lot of fun this winter so far. I like playing in the snow with Daddy.  I love sledding, but I am not a fan of the cold wind.

I had a wonderful Christmas with my family also. We got to visit with a lot of people, but unfortunely we all got sick just after Christmas. I had a small seizure when my fever came on. Thankfully it stopped by itself and I didn’t have to go to the hospital. This seizure was a bit differant then what I’ve had in the past. Mommy says I wasn’t shaking or convulsing. I wasn’t moving at all, didn’t respond to anything and just cried. Mommy is thankful for all the equipment we have at home to help me. It meant she didn’t have to call for an ambulance and they could just watch me after I stopped and just slept for the next couple hours.

We know that totally seizure freedom is virtually impossible for a kid with Dravet. I am lucky to only be having seizures with fever right now. Hopefully my year as a 6 year old will be as seizure free as my year as a 5 year old was!

I am so excited about tomorrow! Happy Birthday Taylor! (and me!)